Archive for September, 2010

brief update

September 30, 2010

yea, I know not much has been posted here lately.   Partly, that’s good news.  Means I’m at least still at work, and not at home recuperating in bed.  I have had lots of news to share, just not the time to write. 

Life seems crazy busy, and I feel as if I’ve been swept onto the fast train.  It’s not all bad.  I’ve had some really cool opportunities come my way and had fun.  But also have new responsibilities both at home and work, and not another minute has been added to the day to get it all done.  I’d be frustrated, but I’m too tired to work up that much energy.

In the meantime, a quick update:  Seems as if the recent ultrasound (ovaries) was OK, but really I’m not completely convinced.  Maybe it’s the cancer apprehension speaking, but I think when I see the U of M onco next month, I’ll schedule the genetic (BRCA1 and BRCA2) testing.  Might as well know those odds.

Reconstruction surgery #2 has been delayed due to DVT, but the plan now is to have that surgery in January.  And speaking of DVT, I’m still on blood thinners and my goal is to be off of them by November.  I’ll be very lucky if that happens, but that’s what I have set in my mind at this point in time.

Just this week during my radiation oncology visit my substitute-doctor told me the weird metal taste I’ve had in my mouth for a week now is Thrush.  Great.  Another medicine.  Another thing to deal with.  But, I guess on the scale of all the things that could happen, I should probably be grateful that I have a stupid fungal infection now.  At least I’m trying to talk myself into that mindset for the now.  But, it also means that my immune system is not where it should be………sigh…….it’s all so disappointing. 

But in the meantime, I just keep getting through each day, and hope that I might actually be seeing a sliver of light at the end of this really crappy tunnel.

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9

September 13, 2010

9 is a very good number when it comes to the CA125 test.  Anything below 30 is considered low risk for ovarian cancer.  So 9 sounds good to me.  However, the most recent research I can find indicates that this specific test will show  elevated levels in only 50% of early tumors. So………. apparently this week I will be on another rollercoaster ride until my docs receive the ultrasound reports and interpret them for me.  Maybe tomorrow.

TIME SENSITIVE INFORMATION – ON LINE REGISTRATION TO RACE/WALK/”SLEEP IN” DUE BY 9/17/10

In the meantime, maybe someone reading this might like to support me, or make a donation for the Komen Race for the Cure in a couple weeks.  Maybe you even wanna join my TEAM!  That would be Team JBN.  Maybe you just want to donate a few dollars.  Or maybe a bunch of dollars ( I still need more than $100.00 to meet my fundraising goal of $400.00)

Heres where you go:

http://nworace10.kintera.org/faf/donorReg/donorPledge.asp?ievent=418590&lis=1&kntae418590=C30A281E24DF4FFA8D274253A968B69E&supId=301701420 ( I know this is ridiculous, I don’t know how to make the links easy and cool looking…)

Look for Team JBN if you want to join in (or even join the “Sleep for the Cure” team for heavens sake!).

Look for my name:  Kay-Lynne Schaller if you would like to make a donation.

And, thanks for your support.  I can not express just how much your interest/care/concern has helped me.

can’t shake that “bummed out” feeling

September 12, 2010

I really shouldn’t be so disappointed, but I am.

Last Friday I had a repeat ultrasound of my ovaries.  Repeat, because three months ago there was a “blockage” in the area of the right ovary.  Apparently, you couldn’t see a thing.  My doc said since my CA125 test* results were so good, that we would wait to retest.

And on Friday….again, the technician couldn’t see the right ovary.  Again, I had a transvaginal ultrasound.  (For the record, this is my absolute least favorite test.  I won’t even describe it.  Yuck.)

I suppose my doc will see the records by Tuesday, which is not soon enough for me.  I’m trying to not jump into the anxiety pool, but I fear I’m already there.

My hope is to find out it’s all for nothing….perhaps I’m just full of s*#^.

*

What is CA 125?

CA 125 is a protein that is a so-called tumor marker or biomarker, which is a substance that is found in greater concentration in tumor cells than in other cells of the body. In particular, CA 125 is present in greater concentration in ovarian cancer cells than in other cells. It was first identified in the early 1980s, and the function of the CA 125 protein is not currently understood. CA stands for cancer antigen.

How is CA 125 measured?

CA 125 is usually measured from a blood sample. It can also be measured in fluid from the chest or abdominal cavity. The tests currently in use are all based upon the use of an antibody that is directed against the CA 125 protein (monoclonal antibody technique).

from http://www.medicinenet.com/ca_125/article.htm#tocb